To Remember Me - Organ Donation
Journey of Hearts
A Healing Place in CyberSpaceTM
Share your life...
As a physician, I have had to
approach families following the often sudden death of a loved one. Organ
Donation is a way of turning the sudden loss into a positive experience,
and becomes a way of remembering.
In December the American
Medical Association voted to endorse the approach of the Texas Medical
and Then Give" program. The AMA is now looking into ways that it can
work with all states to implement the program nationally and is working
to increase public awareness about organ donation. I
realized that our website was a perfect area for educating people on organ
donation and was a way, as an AMA Member, to work on getting out the word
to the public.
Each day a lucky 55 people
(or so) receive an organ transplant,
but another 55,000 are
on the waiting list.
10 people on the waiting
list die each day,
because not enough organs
Four thousand of them die
each year while waiting.
16 minutes a new name is added
the National Organ Transplant waiting list.
What follows are several inspirational,
motivational stories, a variety of resources for organ donation - including
information and where to get organ donor cards, and a few other transplant
stories we have found on the Internet.
This page was started in response
to the following e-mail that we received in July 11, 1998:
On May 1, of this year, our 23
year old daughter, returned home. After an automobile
accident in a frightful storm, she sustained a closed head injury and was
declared brain dead on May 3. Shannon
was an organ donor and I am so very proud of her.
I know that she is continuing to fulfill her soul's purpose and I am desperately
trying to find a way
to make her proud of me. She is the love of my life, my best friend and
constant companion and
until I learn to hear her with new ears and see her with new eyes my
loneliness leads me on a path of discovery.
Thank you for being there. It is only in extending love
to others facing this same journey, that I can accept the love that will
light my way.
There have been so many things that
have sustained us in the weeks since Shannon's accident. The gentle
compassion extended to us by the hospital staff, chaplain and the Life
Net representative, gave us the strength to carry out our daughter's wishes.
We found out on the Sunday morning following her accident that there was
a 17 year old boy who had been on a heart machine in the hospital for 18
months and because of his unique situation, the heart had
to be a perfect match and Shannon's
was. We have heard that he has left the hospital for the first time
in almost two years. I know that Shannon is grinning from ear to
ear. It would please me very much to contribute in some way to your
support of Organ Donation. Knowing that other families are together
because of our child's generous spirit makes us very happy.; I hope
that others will find that same peace.; Love,
To Remember Me - I will
Robert N. Test
The day will come when my body will
lie upon a white sheet neatly tucked under four corners of
a mattress located in a hospital;
busily occupied with the living and the dying. At a certain moment a doctor
will determine that my brain has ceased to function and that, for all intents
and purposes, my life has stopped.
When that happens, do not attempt
to instill artificial life into my body by the use of a machine.
And don't call this my deathbed.
Let it be called the bed of life, and let my body be taken from it to
help others lead fuller lives.
Give my sight to the man who
has never seen a sunrise, a baby's face or love in the eyes of a woman.
If, by chance, you wish to remember
me, do it with a kind deed or word to someone who needs you.
If you do all I have asked, I will
Give my heart to a person whose
own heart has caused nothing but endless days of pain.
Give my blood to the teenager
who was pulled from the wreckage of his car, so that he might live to see
his grandchildren play.
Give my kidneys to the one who
depends on a machine to exist from week to week.
Take my bones, every muscle,
every fiber and nerve in my body and find a way to make a crippled child
Explore every corner of my brain.
Take my cells, if necessary,
and let them grow so that, someday a speechless boy will shout at the crack
of a bat and a deaf girl will hear the sound of rain agianst her window.
Burn what is left of me and scatter
the ashes to the winds to help the flowers grow.
If you must bury something, let
it be my faults, my weakness and all prejudice against my fellow man.
Give my sins to the devil.
Give my soul to God.
Robert N. Test
two hand image is adapted from the Creation Series, Creating Adam by Michangelo
Organ Donor Stamp
The United States Postal Service
(USPS) released the Donor stamp on Wednesday, August 5, 1998. The stamp
was designed by artist, Andy Levine and it makes a graphic depiction of
the act of donation. The message on the stamp is, Organ and Tissue Donation,
Share your life...
If you are interested in Organ
Donation, ask your local post office for this special stamp.
AMA to Increase Awareness of
Live to Give Campaign
Started by the Texas Medical
Association's and their Alliance this campaign was aimed to increase organ
donation awareness. Now this Campaign will be adapted to the National Level.
(888) 90-SHARE (for a brochure)
Health Resources and Services
Administration, Division of Transplantation
United Network for Organ Sharing
5600 Fishers Lane, Rockville,
From the U.S. Department of
Health and Human Resources (DHHR) and the Health Resources and Services
Administration (HRSA) Human Resources. The site provides information and
resources, including many Frequently
Asked Questions on Organ and Tissue Donation.
From this site you can download
and sign a donor card.
1100 Boulders Pkwy Suite 500
P.O. Box 13770 Richmond, VA 23225-8770
The United Network for Organ
Sharing, or UNOS joins together the transplant community under a nationwide
umbrella. UNOS maintains the database that contains all clinical transplant
data. Through the UNOS Organ Center, organ donors are matched to waiting
recipients 24 hours a day, 365 days a year. Through its policies,
UNOS ensures that all patients have a fair chance at receiving the organ
they need - regardless of age, sex, race, lifestyle, religion, financial
or social status. UNOS works to raise public awareness about the importance
of organ donation and works to keep patients informed about transplant
issues and policy.
TransWeb (734) 998-7314
TransWeb The Northern Brewery
Bldg. 1327 Jones Dr., Suite 105
Ann Arbor, MI 48105
Coalition on Donation
The TransWeb Team is composed
of people interested in transplantation and donation: transplant patients
and their family members and friends, health care providers, organ procurement
specialists, donor families, transplantation researchers, and
interested members of the general
public. TransWeb is a nonprofit educational Internet resource devoted
to transplantation and donation.
1100 Boulders Parkway, Suite
500 Richmond, Virginia 23225-8770
National Transplant Society
312-701-0700 · Fax: 312-701-0750
The Coalition on Donation is
a not-for-profit alliance of both local coalitions and national organizations
who have joined forces to promote organ and tissue donation. The Coalition
has created national education and action campaigns for distribution.
The Coalition is dedicated to educating
the public about organ and tissue donation, correcting misconceptions about
donation and creating a greater willingness to donate.
The Coalition has developed
two key slogans "Are you and organ & tissue donor?" and "Share your
life. Share your decisionsm"
to promote the importance of donation.
318 W. Adams, Suite 1700 ·
Chicago, IL 60606
James Redford Institute for Transplant
Awareness (310) 441-4906
The National Transplant Society
is dedicated to serving as an advocate for the American people - on issues
relating to organ donation and transplantation.
The mission is to substantially
increase the availability of lifesaving organs in the near term, and to
serve as the advocate and representative of the American people on issues
relating to organ donation and transplantation.
January 4th for the official
launch of the NTS website and the National Donor Registry.
10573 West Pico Boulevard #
214 Los Angeles, CA 90064
Transplant Recipients International
Organization, Inc. (TRIO) 800-TRIO-386
The James Redford Institute
for Transplant Awareness was established by James Redford following his
1993 liver trahsplant. The JRI is an independent, non-profit organization
dedicated to producing and distrubuting high-quality films, develop educational
support materials and create an outreach program to educate the public
about the issues of organ and tissue donation and help build the base of
potential organ donors.
1000 16th Street, NW Suite 602
Washington, DC 20036-5705
TRIO is an independent, not-for-profit,
international organization commited to improving the quality of life of
transplant candidates, recipients, their families and the families of organ
and tissue donors.
TRIO (Transplant Recipients
International Organization) organized a unique nationwide campaign (coinciding
with the release of the new transplant stamp) to encourage all transplant
recipients to stop and say "Thank you!" and write a letter of thanks for
their gift of life.
5809 Ward Court, Virginia Beach,
Virginia, 23455, USA.
LifeNet is the largest, full-service,
non-profit allograft Tissue Banking System in the United States, providing
human allograft tissue transplants to over 50,000 patients a year--worldwide.
LifeNet is a nationally-recognized
leader in the field of human allograft tissue banking, providing quality
tissue allografts and related services to thousands of hospitals and clinicians
Other Transplant Stories
Great website! I am dealing
my son's diagnosis of leukemia last August, and his bone marrow transplant
last November. Tough business, and your website validates the feelings
of individuals dealing with major life altering events. Keep up the good
Hello. I read the poem, I
watch you Go while I was on Journey of Hearts and I want to thank you.
As I read this poem I could see
To explain a little more: I am 22
yrs old and I have always been "Daddy's little girl." I looked up to my
dad very much. For me he was my dad, mom and my Best friend. We were very
close. In May he suffered from a Massive Heart Attack and was awaiting
a heart Transplant. At that time I decided to pack my 2 children, leave
my life behind, and go to him to make sure everything for my dad would
be taken care of.
He lived at the hospital for 3 months
while waiting for a heart. This was very hard for the both of us because
he was a very strong willed man. He worked for 37 yrs and he was only 52
when this happened, but it also made us even closer because we had to stick
In July he started having strokes
and it got to a point where there was nothing more the doctors could do.
So I had to make the hardest decision in my life--that was to let my dad
go. He knew what was going on and this made it even harder to deal with.
I will never forget one of the last things my dad said to me:
"Di, it is time. You're strong.
Just un plug this and let me go. I love you."
Well I did. I had never felt
so alone in all of my life. After that I watched him lay there for 3 more
days, until he was gone. It is very hard to deal with but when I read this
poem, I thought this is it. This is us. He and I were very close. This
was something I never thought would happen to my dad. Now I have to face
this and there are alot of times that I dont think I can face this any
more. Since I have found Journey of Hearts when I get to that point I come
here. It helps a great deal and I really appreciate all of you. So I want
to say thank you very much!!
Transplant Stories on the Web
Gift of Life Webring
We are honored to be included
in the The Gift of Life Webring, as a way to help promote education of
the public about the need for Organ Donation.
This ring was created by Deb
Alleman, in memory of Cole Anthony Alleman as a way of passing on his legacy
by promoting Organ and Tissue Donation. The site was created to link together
Donor Families and Transplant Recipient Families throughout the world.
We, Donor and Transplant Recipient Families to pass on Loved Ones
Legacy, by sharing the stories and educating the general public about making
the decision to share their life by giving "The Gift of Life".
Last updated January 30, 1999
The Green Ribbon signifies organ donation.
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