Journey of Hearts

Those resources selected are ones with good reliable information, from legitimate, reputable sources. In particular we have looked for comprehensive resources and those with good references lists for a particular area of interest, with the eye for both the general public and the medical profession. In some cases, those who have lived the loss are the best experts on the subject, so these sites have also been included.

The links and information resources are provided to allow people to obtain useful and more accurate information on a variety of subjects, to help them understand their loss. Disclaimer.

Since the topic of loss is so vast the listing of these resources is also vast and will be expanding as we discover more resources to include. If you know of a good resource (or discover a broken link) to be included on our listing please email us at:

Eating Disorders

National Eating Disorders Organization (NEDO)  (918) 481-4044
6655 South Yale Ave Tulsa, OK 74136
Treatment referrals and information distribution. Focuses on prevention, education, and research.
http://www.laureate.com/nedointro.html
American Anorexia/Bulimia Association, Inc.   (212)575-6200
165 West 46th Street #1108 New York, NY 10036
The American Anorexia/Bulimia Association, Inc. was founded with the knowledge that increasing the public's consciousness of Eating Disorders their prevalence, the early warning signs and symptoms the best way to bring about their prevention.
http://members.aol.com/amanbu/index.html
Something Fishy on Eating Disorders
Created by a person in recovery for Anorexia, a wonderful resource for information on Eating Disorders. The site also has memorials for those who have died, and for those who have recovered. American Connection for Eating Disorders Shared Awareness
http://www.something-fishy.com/ed.htm
Eating Disorders Mirror Mirror
Canadian connection for Eating Disorders Shared Awareness
http://www.mirror-mirror.org/eatdis.htm
Site Contains a Surviviors Wall created to acknowledge the many people who are fighting to free themselves from their eating disorder and those who have recovered. http://www.mirror-mirror.org/surwall.htm
National Association of Anorexia Nervosa and Associated Disorders (ANAD) 847-831-3438.
ANAD, Box 7, Highland Park, IL 60035
ANAD works to prevent eating disorders and provides numerous programs all free to help victims and families, including hotline counseling, support groups serving thousands of communities, referrals to health care professionals, information packets and newsletters.
ANAD is actively involved in advocacy issues and does research in the field.

Epilepsy Foundation (800) 332-1000
The single national, non-profit, charitable agency dedicated to fighting epilepsy in the United States to finding a cure for epilepsy and creating a positive quality of life for all those affected by seizures.
http://www.efa.org/indexf.htm
Epilepsy Foundation of  Northern California
http://www.efnc.com/index.html
Stanford Medical Center - Ketogenic Diet Program
Ketogenic diet is a special method of treating epilepsy (seizure disorders). This Web Site was created by the Pediatric Neurology Division at Stanford University School of Medicine to facilitate communication between health care providers who are using the ketogenic diet to treat epilepsy.
http://www-leland.stanford.edu/group/ketodiet/
Epilepsy Ontario
A well organized site with many links to other resources for Epilepsy.
http://ontario.epilepsy.org/index.html

National Eye Institute
http://www.nei.nih.gov
For Patient Information and Quizzes to determine if you are at risk for eye disease
http://www.nei.nih.gov/pubpat.htm

The National Organization on Fetal Alcohol Syndrome (NOFAS) (202) 785-4585
418 'C' Street North East Washington, DC 20002
NOFAS is committed to raising public awareness of Fetal Alcohol Syndrome  (The leading known cause of mental retardation),and to developing and implementing
innovative ideas in prevention, education, intervention, and advocacy in communities throughout the nation. The organization was founded in 1990 for the purpose of eliminating birth defects caused by alcohol consumption during pregnancy and improving the quality of life for those individuals and families affected.
http://www.nofas.org/

WEBster
A website designed by a pediatric nurse to help patients and families confront death and dying and other difficult issues. The site includes links to many different areas relating to hospice, suicide, miscarriage, sudden infant death syndrome, grief in children, organ donation and transplantation, domestic violence, funerals and burials, and religious and cultural aspects of death. (Review from Carrie Lybecker, RN of the American Journal of Nursing) http://www.katsden.com/webster/index.html
Death and Dying Index  http://www.katsden.com/death/index.html
Crisis, Grief & Healing
One of the original Grief resources, by Tom Golden, LCSW. This resource has been serving the on-line community since February 1995.
The site includes a variety of resources including 'A Place to Honor Grief, a page dedicated to sharing the stories. Also included a variety of threaded discussions.
http://www.webhealing.com/
Growth House
The net's most extensive directory of reviewed resources for end of life care. The web site is an international gateway to resources for life-threatening illness and end of life issues. Their primary mission is to improve the quality of compassionate care for people who are dying through public education about hospice and home care, palliative care, pain management, death with dignity, bereavement, and related  end of life topics. Growth House offers a free monthly e-mail message with leads on new "best of the net" sites related to terminal care and bereavement.
http://www.growthhouse.org
Grief Recovery Online (founded by) Widows & Widowers
GROWW was founded by a group of widows and widowers who understand that when a spouse dies, our husband or wife, was also a son or a daughter, an aunt or an uncle, a brother or a sister, a grandmother or a grandfather, a mother or a father and finally a friend. The primary function and expertise of GROWW is the development of bereavement support groups online in the format of “chat rooms," and promotes Grief Recovery for ALL Bereaved.
http://www.groww.com/
Good Grief! For Those Who Have Lost Loved Ones
This website was created by a grieving woman who lost both her son and husband in a tornado. As with Journey of Hearts, her hope is that by sharing the experience that others may understand they are not alone in their grief. The site contains a collection of Grief Links and Resources, as well as a Treasured Memories Memorial Page, along with areas to Share the Grief.
http://www.geocities.com/Heartland/Valley/4464/

Healthy Way
This Web site, created in Canada, is dedicated to helping people get well and stay well.
The Healthy Way provides a balanced health focus, combining the elements of  traditional medicine, complementary medicine, and with a healthy, active living. The site contains online health community resources that "overcome the limitations of time, distance, rarity of condition, and physical disabilities." Comprehensive, well organized resources plus a unique review/rating system helps people quickly and easily access relevant information and services. 
http://healthyway.sympatico.ca/
American Medical Women's Association's Health Topics
This site by the American Medical Women's Association's provides information about a variety of different medical issues of interest to women. The information provided on this site as a public service and is not intended to be a substitute for medical care or consultation with your physician.
http://www.amwa-doc.org/healthtopics/healthlist.html
 

Self Help for Hard of Hearing People, Inc. (SHHH)
(301) 657-2248 or TTY number (301) 657-2249
7910 Woodmont Avenue, Suite 1200, Bethesda, MD 20814
SHHH is a volunteer, international organization of hard of hearing people, their relatives, and friends. It is a nonprofit, non-sectarian educational organization devoted to the welfare and interests of those who cannot hear  well. Publishes bimonthly journal, Hearing Loss, as well as publications on all aspects of hearing loss. Largest support organization for hearing loss.
http://www.shhh.org/
National Institute on Deafness and Other Communication Disorders (800) 241-1044
This group will send material on hearing impairment.
http://www.nih.gov/nidcd/
NIDCD Information Clearinghouse http://www.nih.gov/nidcd/eaglinfo.htm
American Speech-Language-Hearing Association (800) 498-2071  (301) 897-0157 TTY
10801 Rockville Pike Rockville, Maryland 20852
Information sheets and pamphlets available on hearing troubles.
http://www.asha.org/

American Heart Association (800) 553-6321
For information on Heart Disease and Stroke
http://www.amhrt.org
Includes an AHA Health Risk Assessment for determining the risk of heart disease or stroke
http://www.amhrt.org/risk/quiz.html
National Heart, Lung and Blood Institute (NHLBI) (301) 496-0554
National Institutes of Health   P.O. Box 30105  Bethesda, MD  20824-0105
http://www.nhlbi.nih.gov/nhlbi/nhlbi.htm

U.S. Department of Agriculture Agricultural Genome Information system
http://probe.nalusda.gov
For the link to the Plant Reference http://probe.nalusda.gov:8000/alldbs.html#reference
NAPRALERT  College of Pharmacy, The University of Illinois at Chicago
www.pmmp.uic.edu
NAPRALERT must be accessed through e-mail http://www.pmmp.uic.edu/mcp/nap1.html
Food and Drug Administration
A variety of information available on Prescription Drugs, Herbals, Botanicals, Cosmetics and more.
http://www.fda.gov

Herpes Resource Center, confidential hotline (919) 361-8488
From the American Social Health Association
http://www.sunsite.unc.edu/ASHA/
9 a.m. to 7 p.m. Eastern Time, Monday through Friday
Herpes Resource Center    (800) 230-6039
For Printed Material: American Social Health Association P.O. Box 13827 Research Triangle Park, NC 27709-9940
National Institute of Allergy and Infectious Diseases
http://www.niaid.nih.gov/default.htm
Fact sheet on Herpes http://www.niaid.nih.gov/factsheets/stdherp.htm
Cafe Herpe
(Provided by one of the Drug Companies who manufacture FAMVIR® (famciclovir)
A light-hearted presentation of a very difficult topic. Also with a Gallery Tour of Romantic Art.
http://www.cafeherpe.com

National Hospice Organization (703) 516-4928
1901 North Moore Street, Suite 901 Arlington, VA 22209
http://www.nho.org
Hospice Foundation of America (800) 854-3402
777 17 ST. #401 Miami Beach, FL. 33139
2001 S ST. NW #300 Washington, D.C. 20009
http://www.hospicefoundation.org/
Hospice Web
A Resource for finding Hospice sites near you.
http://www.teleport.com/~hospice/index.htm
American College of Physicians Home Care Guide for Advanced Cancer
An excellent resource book from the American College of Physicians, endorsed by the Canadian Society of Palliative Care Physicians to help care for cancer patients in the home.
http://www.acponline.org/public/h_care/
Growth House (Hospice-Bereavement-HIV Links-Free Home Pages)
The net's most extensive directory of reviewed resources for end of life care. The web site is an international gateway to resources for life-threatening illness and end of life issues. Their primary mission is to improve the quality of compassionate care for people who are dying through public education about hospice and home care, palliative care, pain management, death with dignity, bereavement, and related  end of life topics. Growth House offers a free monthly e-mail message with leads on new "best of the net" sites related to terminal care and bereavement.
http://www.growthhouse.org
Pam's Hospice Page
A Website, created by a hospice nurse, with Resources for Hospice, Grief, Cancer, Cardiac and OB/Gyn. Another site as diverse as Journey of Hearts.
http://www.cp-tel.net/pamnorth/hospice.htm

Hydrocephalus Association    (415) 732-7040
870 Market Street, Suite 955 San Francisco, CA 94102
The Hydrocephalus Association was founded in 1983. It provides resources and support to those who care for people with Hydrocephalus--families and physicians.
Their mission is to insure that families & individuals dealing with the complexities of hydrocephalus receive 1)Personal support   2) Comprehensive educational materials 3) On-going quality medical care
http://neurosurgery.mgh.harvard.edu/HA

American Association of Retired Persons
Retired Persons Services, Inc. Provider of the AARP Pharmacy Service (800) 289-6031
http://www.aarp.org/
American Diabetes Association (800) 232-3472
http://www.diabetes.org/default.htm
American Urological Association, Inc.
1120 N. Charles Street Baltimore, MD 21201-5559
General Information: http://www.auanet.org
Search http://www.auanet.org/search/
Impotence World Association (800) 669-1603
10400 Little Patuxent Parkway Suite 485 Columbia, Maryland, 21044-3502
Impotentence Institute of America and Impotence Anonymous information

Center for Disease Control (CDC) http://www.cdc.gov
Diseases, Health Risks, Prevention Guidelines and Strategies http://www.cdc.gov/diseases/diseases.html
National Center for Infectious Diseases Centers for Disease Control
Selected Prevention and Program Areas http://www.cdc.gov/ncidod/diseases/diseases.htm
CDC Travel Information
All the latest information on Traveling and safety with vaccine and prophylactic medication recommendations
http://www.cdc.gov/travel/travel.html
National Institute of Allergy and Infectious Diseases
http://www.niaid.nih.gov/default.htm
Division of Microbiology and Infectious Diseases
http://www.niaid.nih.gov/research/Dmid.htm
National Immunization Information Hotline
From the American Social Health Association
English M-F,  8 A.M. - 11 P.M., Eastern Time            1-800-232-2522
Spanish M-F,  8 A.M. - 11 P.M., Eastern Time            1-800-232-0233
ASHA is a nonprofit ogranization dedicated to the prevention and control of all sexually transmitted diseases. http://www.sunsite.unc.edu/ASHA/

RESOLVE, Inc. Business office phone: 617-623-1156 National HelpLine: 617-623-0744
1310 Broadway Somerville, MA 02144-1779
RESOLVE is a national non-profit organization that, for more than 20 years, has assisted people in resolving their infertility by providing information, support, and advocacy.
http://www.resolve.org/
American Society for Reproductive Medicine (ASRM) Tel: (205) 978-5000
1209 Montgomery Highway Birmingham, Alabama 35216-2809
The ASRM is an organization devoted to advancing knowledge and expertise in reproductive medicine and biology.
http://www.asrm.org/
The International Council on Infertility Information Dissemination (703) -379-9178
PO Box 6836 Arlington, Virginia 22206
INCIID, pronounced "inside," is a nonprofit, organization committed to providing the most current information regarding the diagnosis, treatment and prevention of infertility and pregnancy loss.
http://www.inciid.org/index.html