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~ Learning to Let Go:
Patient as Teacher ~
Kirsti A. Dyer, MD, MS, BCBT
It started as one of those typically crazy call
days in early November 1995, when I was paged—another admission. As I hung
up the phone, I was annoyed. "Why is this patient coming in now?" The E.D.
doc said it was a patient who should have followed up in the clinic weeks
ago, but didn’t. Now she was coming for evaluation on my shift. However,
within a few days of admitting this patient, my annoyance turned to admiration,
as I discovered what a rare person she was. I could not know then how much
Sandy would teach me about the strength of the human spirit, the will to
live and knowing when to ‘let go.’ She taught me to accept, that much as
we may want to, we cannot ‘save’ every patient.
Learning to ‘let go’ of the desire to do more
was a lesson reinforced many times during training, but never so poignantly
as with Sandy’s case. At first her love of life and her young age, 37 motivated
us to try everything—Chemotherapy, Radiation Therapy, Therapeutic Touch,
Reiki, Humor, and Prayer—to stop the metastatic lung cancer. She was a
very special person. When admitted for chemotherapy treatments, she would
wander the hospital wards looking for other patients to cheer up. She would
arrive at her Radiation Treatments dressed to the ‘nines.’ Those who met
her had difficulty believing the reality of the metastatic disease process
raging inside her. I had tear-filled eyes, when I told her the treatments
were not working. The metastatic disease was growing, despite all the hopes
and treatments. It was a terminal disease. We could only let go of the
desire to do cure and aim for palliative treatment.
By this point, I realized that my role was to
support her belief that she would beat the disease. Once she lost sight
of that goal and admitted defeat to me, she would lose her will to live
and the fight. The closest Sandy got to acknowledging the severity of her
disease was a question posed while looking out her hospital window
into the mountains behind Santa Barbara. She asked, "Doesn’t it look like
you could just walk out this window and into the hills?" I knew then she
was starting to let go.
The last time I spoke with her was a Thursday
evening in late April. She was struggling with what it meant to be "on
hospice, " asking, "Wouldn't you want to do everything to live?" I didn't
know what to say. I knew there was nothing else that medicine could offer
except comfort care. The disease was end-stage. I could only be a friend
on the other end, listen, and just be.
It ended the following Monday, on my last call
day as a resident. I was in the emergency room admitting a patient when
the outside phone page came. The visiting nurse told me that Sandy had
died. As she always made an impression when she arrived, I knew Sandy would
make an impression when she departed. At first I was overwhelmed with tears,
until I realized the irony of the situation. My last call day—another crazy,
hectic call day— and to have this favorite patient and friend die. I smiled
when I realized that her timing ensured I would remember the date of her
death!
I felt for sometime afterwards that I hadn’t done
enough. In hindsight, reviewing her treatment, I realized we did as much
as any one could have, maybe more. When I started treating Sandy in early
November, I did not believe she would live until Thanksgiving. Yet, she
was able to fulfill her wish and visit her family in the Midwest for Christmas,
before returning home to continue treatments. I believe that the combination
of therapies, both medical and adjunctive, helped extended her life for
6 months. It took a bit longer to recognized that I had given her the greatest
gift that I could—being her friend and physician. By listening, holding
her hand, giving her emotional support, I helped her find the strength
and the courage to make the ultimate transition and ‘let go.’ In return,
this rare patient taught me the importance of taking the time to connect
with the person behind the disease. In caring for her, I learned how to
help others find the strength and the courage to ‘let go.’ This lesson
is one shared many times since with other terminal patients, their families
and my own family.
In her memory, and those of other patients that
I have lost, I created the Journey of Hearts website http://www.journeyofhearts.org.
What began as a way for me to deal with these losses is now a multi-award
winning website, devoted to the issue of loss, that has seen over 100,000
visitors in almost two years. The many deaths of patients served as the
motivation and provided me with the background necessary for creating this
unique website. The website has also served as another way to pass on the
important lesson of learning to ‘let go.’
This article was originally published
in the Spring 2000 issue of Female Physician.
By
listening, holding her hand, giving her emotional support,
I helped her find the
strength and the courage to make the ultimate transition and ‘let go.’
In return, this rare
patient taught me the importance
of taking the time to
connect with the person behind the disease.
See the Emergency
911 Page for links to immediate resources
if you are feeling helpless,
hopeless, overwhelmingly depressed, or suicidal.
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