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Recommendations for Evaluating
Online Resources:
Advice for Healthcare Consumers - Part 2
The Not-so Legitimate Online "Practitioners"
and "Practices"
It easy to create a professional appearing presence
in cyberspace, so non-professionals and Internet entrepreneurs have flooded
the Internet, offering "mentoring" or "counseling" services, "miracle cures"
or other products. These "mentors" or "life counselors" are hawking their
experiences to those who are willing to pay for their so-called expertise.
There is a growing, unspoken concern that with the invasion of online health
sites the health field has returned to the time at the beginning of the
20th century, when crassly commercial businessmen, quacks and charlatans
were promoting themselves as first-rate health care providers and peddling
their products and potions as "safe," "effective," "natural," and "health
promoting." Since these unlicensed, unqualified online information providers
are not professionals there is no professional regulatory organization
to which they can be reported for professional misconduct. These are examples
of people working outside the ethical boundaries on the Internet committing
health fraud, who are difficult to discipline without some enforceable
regulations from regulatory bodies. [1,3]
Misleading offers and advice can be costly in
several ways: consumers can lose money. More importantly they can increase
their health risk, especially if they delay or forego a medical treatment
prescribed by their physician. There also is a risk that these products
may have dangerous interactions with other medicines. Healthcare consumers
need to be protected from those who might take advantage of them. The not-so
legitimate "practitioners," "practices" and "peddlers" flooding the Internet
and may be detrimental to healthcare consumers need to be exposed and their
practices brought under legitimate regulations or closed. The FTC advises
healthcare consumers to consult their doctor, pharmacist, other healthcare
professional, or public health organizations before purchasing any online
product or following any online treatment. [1, 10]
Tip-offs to Rip-offs
[10]
and How to Spot False Claims [11]
The Federal Trade Commission offers the following
tips to help in evaluating health-related claims and avoid getting ripped
off by online products.
-
Claims that the product is "natural" or "non-toxic."
"Natural" or "non-toxic" does not necessarily mean safe.
-
Undocumented case histories or personal testimonials
by consumers or doctors claiming "amazing" results.
-
Promotions that use words like "scientific breakthrough,"
"miraculous cure," "exclusive products," "secret ingredient" or "ancient
remedy."
-
Claims that the product is a quick and effective
cure-all for several ailments.
-
Impressive-sounding but generally meaningless scientific
terms.
-
Claims of limited availability and advance payment
requirements.
-
Promises of no-risk "money-back guarantees."
Some signs of false or fraudulent claims:
-
Statements that the product is a quick and effective
cure-all or diagnostic tool for a wide variety of ailments. For example:
"Extremely beneficial in the treatment of rheumatism, arthritis, infections,
prostate problems, ulcers, cancer, heart trouble, hardening of the arteries
and more."
-
Statements that suggest the product can treat or
cure diseases. For example: "shrinks tumors" or "cures impotency."
-
Promotions that use words like "scientific breakthrough,"
"miraculous cure," "exclusive product," "secret ingredient" or "ancient
remedy." For example: "A revolutionary innovation formulated by using proven
principles of natural health-based medical science."
-
Text that uses impressive-sounding terms like these
for a weight-loss product: "hunger stimulation point" and "thermogenesis."
-
Undocumented case histories or personal testimonials
by consumers or doctors claiming amazing results. For example: "My husband
has Alzheimer's disease. He began eating a teaspoonful of this product
each day. And now in just 22 days he mowed the grass, cleaned out the garage,
weeded the flower beds and we take our morning walk again."
-
Limited availability and advance payment requirements.
For example: "Hurry. This offer will not last. Send us a check now to reserve
your supply."
-
Promises of no-risk "money-back guarantees." For
example: "If after 30 days you have not lost at least 4 pounds each week,
your uncashed check will be returned to you."
Tips to Consumers
who buy Health Products Online [12]
Food and Drug Administration offers the following
tips to healthcare consumers interested in buying health products, including
prescriptions online:
-
Check with the National Association of Boards of
Pharmacy, http://www.nabp.net
or call (847) 698-6227 to determine whether a website is a licensed pharmacy
in good standing.
-
Don't buy from sites that offer to prescribe a prescription
drug for the first time without a physical exam, sell a prescription drug
without a prescription, or sell drugs not approved by FDA.
-
Don't do business with sites that have no access
to a registered pharmacist to answer questions.
-
Avoid sites that do not identify with whom you are
dealing and do not provide a U.S. address and phone number to contact if
there's a problem.
-
Don't purchase from foreign websites at this time
because generally it will be illegal to import the drugs bought from these
sites, the risks are greater, and there is very little the U.S. government
can do if you get ripped off.
-
Beware of sites that advertise a "new cure" for a
serious disorder or a quick cure-all for a wide range of ailments.
-
Be careful of sites that use impressive-sounding
terminology to disguise a lack of good science or those that claim the
government, the medical profession, or research scientists have conspired
to suppress a product.
-
Steer clear of sites that include undocumented case
histories claiming "amazing" results.
-
Talk to your health-care professional before using
any medications for the first time.
Discovering or Reporting
Internet Health Fraud or Unlawful Sales of Medical Products
The Food and Drug Administration and the Federal
Trade Commission maintain information about actions against the promoter
of a online products. This information can be found by visiting their websites
at: http://www.fda.gov/oc/enforcement.html
or http://www.ftc.gov. [11]
Internet fraud can be reported to the Internet
Fraud Complaint Center (IFCC) on their website at http://www1.ifccfbi.gov/index.asp.
This government agency addresses issues of fraud committed over the Internet
including both criminal and civil violations. [12] The online charlatans
can also be reported for health fraud online to the Federal Trade Commission,
http://www.ftc.gov. [13]
Unlawful sales of medical products on the Internet can be reported to the
Food and Drug Administration at: http://www.fda.gov/oc/buyonline/buyonlineform.htm. [14]
Resources:
1. Dyer KA. Cyberspace: The
Final Frontier The Internet as an Untapped Medium of Medical Web-Education
A Physician's Perspective. JAMIP: November 1, 1999. Available at: http://www.journeyofhearts.org/jofh/about/cyberspace.
2. Ferguson T. DocTom's Top
Tips for Online Health Searching. The Ferguson Report: Number 8, January
2002. Available at: http://www.fergusonreport.com/articles/fr00804.htm
3. Dyer KA. Ethical Challenges
of Medicine and Health on the Internet: A Review. Journal of Medical Internet
Research. 2001;3(2):e23 Available at: http://www.jmir.org/2001/2/e23/index.htm
4. Kapoun, Jim. "Teaching
undergrads WEB evaluation: A guide for library instruction." C&RL News
(July/August 1998): 522-523. Available
at: http://www.library.cornell.edu/okuref/webcrit.html
5. Beck, Susan. "Evaluation
Criteria." The Good, The Bad & The Ugly: or, Why It’s a Good Idea to Evaluate Web Sources. New Mexico
State University Library. 1997. Last updated March 5, 2002. Available at:
http://lib.nmsu.edu/instruction/evalcrit.html
6. Lister Hill Library of
the Health Sciences. Evaluating Web Resources: A Bibliography. Last updated
Wednesday, August 29, 2001 Available at: http://www.uab.edu/lister/evalnet.htm
7. Kaiser Permanente's Health Information
Checkup Website. Finding Healthy Information Online. May 2001. Available
at: http://www.kp.org/hicheckup
and at: http://www.kp.org/hicheckup/consumer/consumer_frameset.html
8. National Cancer Institute.
10 Things to Know about Evaluating Medical Resources on the Web. Updated
March 23, 2001. Available at: http://cancertrials.nci.nih.gov/beyond/evaluating.html
9. Internet Healthcare Coalition.
Tips For Health Consumers Finding Quality Health Information on the Internet.
2000. Available at: http://www.ihealthcoalition.org/content/tips.html
10. Federal Trade Commission. Virtual
Health "Treatments" Tip-offs to Rip-offs. Available at: http://www.ftc.gov/bcp/conline/edcams/miracle/index.html
11. Federal Trade Commission with
the Food and Drug Administration. "Miracle" Health Claims: Add a Dose of
Skepticism. September 2001. Available at: http://www.ftc.gov/bcp/conline/pubs/health/frdheal.htm
12. U.S. Food and Drug Administration.
Buying Medicines and Medical Products Online. Available at: http://www.fda.gov/oc/buyonline/default.htm
13. Internet Fraud Complaint Center
(IFCC). Available at: http://www1.ifccfbi.gov/index.asp
14. Federal Trade Commission. Available
at: http://www.ftc.gov
15. U.S. Food and Drug Administration.
Reporting Unlawful Sales of Medical Products on the Internet. Available
at:
http://www.fda.gov/oc/buyonline/buyonlineform.htm
Article originated in Part 1.
The Internet
has the potential to be an excellent adjunctive resource for patient web- education.
It also has the unfortunate potential of exposing the public to an unprecedented,
unregulated volume of misleading information on health and illness.
The goal for medical professionals in the next millennium will be to help
sway the balance towards good, reliable medical web-information.
Kirsti A. Dyer,
MD, MS
See the Emergency
911 Page for links to immediate resources
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